Do you know what Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is?
It’s okay if you don’t. I didn’t. I don’t think anyone in our offices did, which is why things like this are important. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disease that causes fatigue, loss of memory and concentration, unexplained muscle and joint pain, and sore throat.
It’s that last one that has special meaning here: sore throat. Jacqueline Ko has suffered with ME/CFS since she was six years old. She’s spent a good chunk of her time bedridden but has still helped found the critically acclaimed production company, Opera Mariposa and the Mariposa Theatre Wing, while mastering a range of vocal skills. Combining both these things, Jacqueline has managed to raise over $35,000 for ME/CFS research, hoping to find a cure and increase visibility.
“ME can change the course of your life forever – it certainly did for me,” Ko says. “I’ve seen studies that compare its impact to multiple sclerosis, late-stage cancer or congestive heart failure, but it’s still rare for this disease to be taught in medical school. They say as many as 9 out of 10 people aren’t even diagnosed. I was lucky in that regard – but the fact is, even with a diagnosis, they still don’t fully understand the cause or have a cure.”
By pairing with the ME/FM Society of BC, Jacqueline has put together a series of musical singles that are meant to tell her story through music, weaving together different stylings and making sure that her show has something for everything. The show draws from diverse genres – from pop to Broadway to opera. Her set will include pieces by Puccini, Verdi, Stephen Sondheim and Andrew Lloyd Webber, as well as songs from the hit musical Hamilton. Jacqueline will be joined on stage by pianist Angus Kellett and several guest artists, and the evening will include a reception as well as a charity raffle contest with over $2,000 in prizes.
You can learn more about her story in the new book, Lighting Up a Hidden World: CFS and ME, by Valerie Free.
The concert itself will take place on Saturday, May 13, 2017, at 7:30 pm at the Marpole United Church, located at 1296 West 67th Avenue, Vancouver. You can click here to buy tickets, click here to find out more about the ME/FM Society of BC, and click here to find out more about Jacqueline Ko and the Opera Mariposa.
Banner photo credits goes to Kathryn Nickford Photography.